The National Platform of Self Advocates is an independent self advocacy organisation.

Dear Minister McGrath,

I am writing to you to raise awareness of the importance of funding Disabled Peoples Organisations (DPO’s) and especially regarding the position of the National Platform of Self Advocates (http://thenationalplatform.ie/) which has stated it cannot continue any longer after January 2020 without funding. Announced on International Day of People with Disabilities when buildings around the country went *going purple* to support disability. ( http://thenationalplatform.ie/closure-national-platform-self-advocates/ ).

I feel also you will appreciate that it is crucial that this work continues from your own experience as a parent.

As you are aware Equality and non-Discrimination are core principles which underpin the CRPD. The full and active participation of PWD’s, on an equal basis with others, the ‘nothing about us without us’ the unofficial motto of the Convention reminds us why DOP’s are crucial. As someone advocating for human rights in the mental health and intellectual disability arenas, I have met various members of the platform advocating, got to know them and indeed participated giving training input as the platform did to various professionals and national advocacy service staff at the Centre for Disability Law and Policy. I am currently studying at the Centre for Disability Law and Policy for an LLM in comparative disability law and policy and both myself and fellow students are frequently reminded of the importance of DPO’s and the work and advocacy of the platform.

The CRPD committee issued a General Comment Number 7 on Article 4.3 and 33.3 of the CRPD in respect of the participation of persons with disabilities in the implementation and monitoring of the Convention (Adopted 21 September 2018).

https://www.ohchr.org/EN/HRBodies/CRPD/Pages/GC.aspx

It clearly clarifies and sets out the States obligations in relation to DPOS’s.

These obligations are clearly not being met in relation to the National Platform of Self Advocates.

Please see also the report on research commissioned by IHREC around the monitoring and implementation of UNCRPD. https://www.ihrec.ie/app/uploads/2016/05/Establishing-a-Monitoring-Framework-CRPD-WEB-151020119.pdf

I would be very grateful if you could arrange to liaise and possibly meet urgently with representatives of the platform to address the lack of funding issue for National Platform of Self Advocates to continue after January. The broader issue of how the State is going to go beyond the precarious charity/philanthropy model and ensure long term funding for DOP’s to uphold its international human rights obligations also needs to be addressed.

Yours sincerely,

Fiona Walsh

Donna McNamara

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Charlotte May-Simera

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Emma Burns

Dear Minister Flanagan, I’m writing to protest the imminent closure of the National Platform of Self-Advocates and to ask you to intervene to prevent the blow to disability rights in Ireland that this loss represents. Ireland was one of the last state parties to...

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Mark Kealy

Dear Minister, I am dismayed to learn that the National Platform of Self-Advocates have been forced to announce they are ceasing operations from January due to an absence of funding and support for their work. I have been involved with advocacy groups since the 1980's...

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Centre for Disability Law and Policy, Institute for Lifecourse and Society, Dangan, North Campus NUI Galway. info.cdlp@nuigalway.ie 6th December 2019 FAO: Minister Charlie Flanagan CC: Minister Finian McGrath RE: Letter of support NPSA The Centre for Disability Law...

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Maria Walls

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Helen McGloin

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Carmel Jennings

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Catherine O’Leary

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Susan Carton

Dear Minister Flanagan, I am writing to you with regard to the National Platform of Self Advocates. As I’m sure you are aware, the National Platform is having to make the decision to close in the New Year, due to a lack of funding. It is essential that this does not...

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Sarah Lennon

Dear Minister Flanagan, I am writing to you with dismay at the news that the National Platform of Self Advocates is to close after almost 9 years due to a lack of funding. The Platform has been a critical voice for people with intellectual disabilities in Ireland, a...

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Address
The National Platform of Self Advocates
The Carmichael Centre
4 North Brunswick Street
Dublin 7

email: myvoiceireland@gmail.com
Tel: 01 873 5702